Fibrolamellar Hepatocellular Carcinoma (FLC) is a rare, aggressive form of liver cancer that primarily affects adolescents and young adults, without underlying liver conditions, typically between 13 and 25. Occurring in about one in five million people, fibrolamellar is difficult to detect and treat, as standard therapies like chemotherapy and immunotherapy are largely ineffective. Surgery is often the only option, but recurrence is common, and there is no known cure.

 

At 21, my little sister Charlotte was diagnosed with the disease. Despite the shock of her diagnosis, Charlotte faced every challenge with incredible strength and resilience. She underwent multiple surgeries and treatments, always with a brave heart and unwavering hope. Charlotte’s determination to fight for her life inspired everyone around her. Though she is no longer with us, her legacy lives on, driving us to find a cure for this rare cancer.

 

Due to its rarity, research is severely underfunded. Scientists like Professor Sandy Simon, whose daughter was diagnosed in 2008, are working to understand the disease and develop treatments, but more support is needed to advance a cure. In her honour, we continue the fight, raising awareness and funds for research, so that one day, no family has to endure this same heartbreak. Your support helps keep Charlotte’s spirit alive and brings us closer to a cure.

 

Charlotte’s strength and determination, even in the face of unimaginable challenges, inspired me to make a promise to her - that I would complete a big physical challenge in her honour. When Charlotte was 16, she lived in a town in southern Spain called Coín. To mark the beginning of our journey, my best friend Joe Lush and I will start our ride in Morocco and stay in Coín on the very first night of our three-week, 2,600km cycling expedition - from Africa all the way to Plumpton Racecourse in Sussex, England.

 

We’ll be arriving at Plumpton on 17th November for the Charlotte Savill Memorial Raceday, a tribute to Charlotte’s incredible spirit and a fundraiser to help fight the devastating disease that took her from us far too soon.

 

Any donation, no matter how small, is greatly appreciated. Thank you!

 

If you donation qualifies for Gift Aid, we would be grateful if you would indicate your willingness for the donation to be eligible for Gift Aid which makes your gift eligible for an additional 25% contribution from HMRC, at no cost to you.